Care Giving Insight and Advice

"The ordinary arts we practice every day at home are of more importance to the soul than their simplicity might suggest." -- Thomas Moore.....

By Bob DeMarco

The Metamorphosis of This Alzheimer's Caregiver
The more I learned the more I wanted to know. I learned a great deal about Alzheimer's disease and dementia--including the science. It helped me understand a very mystifying disease. It helped me to put a frame around something that is difficult if not impossible to describe.

Communication in Alzheimer's World
Let's face it, dealing with dementia is not easy. Understanding Alzheimer's disease is not easy...

Alzheimer's World -- Two Circles Trying to Intersect
When Alzheimer's strikes communication and behavior change abruptly -- overnight. It is up to the caregiver to adjust since the person suffering from dementia is incapable of the adjustment. Understanding this need is the first big step.

Alzheimer's and the Dreaded Bowel Movement

I already wrote about how I beat urinary incontinence and bladder infections. That solution is not perfect. Poop. No enema, no pills, no laxatives. How I won the Poop-E war.....

By Bob DeMarco
Alzheimer's Reading Room

Read Alzheimer's and the Dreaded Bowel Movement

Bob DeMarco is the editor of the Alzheimer's Reading Room and an Alzheimer's caregiver. Bob has written more than 1,200 articles with more than 9,000 links on the Internet. Bob resides in Delray Beach, FL.

About Alzheimer's Reading Room

At the Alzheimer's Reading Room, we discuss solutions to common problems that Alzheimer's caregivers face each day.

On the Alzheimer's Reading Room, we discuss issues like: communication, wandering, incontinence, hygiene, patient symptoms, and what to expect as the disease progresses. We discuss all issues that are important to Alzheimer's caregivers. We provide specific insight, advice, and solutions based on real life experience.

By Bob DeMarco
Alzheimer's Reading Room

I started the Alzheimer’s Reading Room to keep track of the thousands of articles and many books I was reading about Alzheimer's disease.

I soon realized that Alzheimer's caregivers are often thrust into their role with little or no experience, training, or education about Alzheimer's disease. As a result, they are often overwhelmed and suffer from feelings of helplessness. Forty percent of Alzheimer's caregivers suffer from depression.

Alzheimer's Reading Room: Conquering Urinary Incontinence -- The First Bladder Infection of the Year

Last year my mother had five bladder infections. This is a common occurrence amongst people suffering from Alzheimer's disease and dementia....

By Bob DeMarco

Alzheimer's Reading Room: Conquering Urinary Incontinence -- The First Bladder Infection of the Year


The Complete Eldercare Planner, Revised and Updated Edition: Where to Start, Which Questions to Ask, and How to Find Help

Articles about Alzheimer's Disease and Dementia

Popular articles that first appeared on the Alzheimer's Reading Room.

Articles include information on: Testing Your Memory for Alzheimer's, Wandering, Aricept, Namenda, Dimebon, Dementia, Caregiving, Wii, Alzheimer's Facts and Figures, Walmart as a Caregiver Tool, and more.

Feel free to share these articles with friends, caregivers, support groups, associations, or on you blog/website.

• Alzheimer's Wandering Why it Happens and What to Do
• Does the Combination of Aricept and Namenda Help Slow the Rate of Decline in Alzheimer's Patients
• 10 Good Reasons to Subscribe to the Alzheimer's Reading Room Now
• Test Your Memory (TYM) for Alzheimer's or Dementia in Five Minutes
• World Health Care Spending and Performance Ranking by Country (Table)
• What is Dementia?
• Five Ways to Keep Alzheimer's Away
• Dimebon Connection Study
• Are Alzheimer's Caregivers the Forgotten?
• A Simple Three Minute Test Can Detect the Earliest Stage of Alzheimer's Disease
• Is it Really Alzheimer's or Something Else?
• Wii a Useful Tool for Alzheimer's Caregivers
• 2009 Alzheimer's Disease Facts and Figures
• The Mini-Cog Test for Alzheimer's and Dementia
• The Alzheimer's Reading Room--Press Release
• Walmart and this Alzheimer's Caregiver

Does the Combination of Aricept and Namenda Help Slow the Rate of Decline in Alzheimer's Patients

My name is Bob DeMarco, I am an Alzheimer's caregiver. My mother Dorothy, now 93 years old, suffers from Alzheimer's disease.

A year ago, my mother's Alzheimer's disease started to worsen. As a result, I was both concerned and worried.

At the same time, I read a new research study about the combination of Aricept and Namenda as a treatment for Alzheimer's disease.

"The results of this study should change the way we treat patients with Alzheimer's disease. Cholinesterase inhibitors are approved for use in mild to moderate dementia, while memantine has been approved for advanced dementia. But it looks like there is an advantage in prescribing both drugs as initial treatment."--John Growdon, MD

The results of the research study indicated that the combination of Aricept and Namenda helped slow the rate of decline in Alzheimer's patients.

To continue reading go here.

Original content the Alzheimer's Reading Room.

The Complete Eldercare Planner, Revised and Updated Edition: Where to Start, Which Questions to Ask, and How to Find Help

Caring for Our Parents (Book Review)

This is a serious book by an accomplished journalist, writer--Howard Gleckman.

'If you are a Boomer, you should buy this book and put it on the coffee table. You will need it in the future to take care of yourself. The notes section of this book, alone, is worth the purchase price. The 22 pages of notes come in the form of a bibliography that you will be referring to over and over in the years ahead.

Caring for Our Parents is chock full of information and example that you, and I, will need as we age'. --Bob DeMarco, the Alzheimer's Reading Room

Caring for Our Parents: Inspiring Stories of Families Seeking New Solutions to America's Most Urgent Health Crisis

To continue reading go here.

The Alzheimer's Action Plan

“Most of us will either get Alzheimer’s or care for a loved one who has"

The Alzheimer's Action Plan: The Experts' Guide to the Best Diagnosis and Treatment for Memory Problems

"This book is the most comprehensive and up-to-date guide for the diagnosis and management of Alzheimer's disease. Whether you are a health care professional or have Alzheimer's in your family or are simply interested to living to an old age, this book is a must read."
--Deepak Chopra, M.D., New York Times bestselling author of Perfect Health: The Complete Mind/Body Guide

Insight and Advice about Alzheimer's Disease
Subscribe to The Alzheimer's Reading Room

"Memory does matter. Adults across the life cycle are asking questions, many questions! The authors answer these questions for the educated public, family members who encounter memory loss in a loved one, and even adults who believe they are experiencing early memory loss. The answers are comprehensive and understandable, no small accomplishment given the plethora of new information available—information that at times is not only confusing but also conflicting."
--Dan G. Blazer, M.D., Ph.D., former Dean of Medical Education, Duke University School of Medicine; past President of the American Geriatrics Society

"Dr. Doraiswamy has done a masterful job of communicating what the layman should know on the treatment, the care giving and, most important, the prevention of Alzheimer's. It was gratifying to learn about the mountain of evidence that what is good for your heart is also good for your brain."
--Arthur Agatston, M.D., cardiologist and #1 New York Times bestselling author of The South Beach Diet

"I love this book! A powerful and vital resource for people who need it the most. Dr. Doraiswamy is that unique blend of medical expertise mixed in with warmth and compassion topped off with humility that makes him rare and wonderful."
--Leeza Gibbons, Emmy award-winning TV host and founder of Leeza's Place and the Memory Foundation

"Lisa Gwyther is a national treasure. She has been a pioneer in providing innovative care and education for Alzheimer’s patients and their families for many years. Lisa’s long experience helping families cope with the challenges of memory loss and Alzheimer’s disease makes her uniquely qualified to co-author this book. Families experiencing the new world of memory loss and Alzheimer’s couldn’t ask for a better companion for the journey. Her warmth, compassion, and wisdom shine through, and will help light the way."
--Pat Lynch, Director of Communications, Alzheimer’s Center Program, National Institute on Aging

"Most of us will either get Alzheimer's or care for a loved one who has. This action plan can empower you to make a difference."
--Mehmet C. Oz, M.D., co-author of the #1 New York Times bestseller, You: The Owner’s Manual

"Five million Americans have Alzheimer disease, and an even larger number with mild to moderate memory loss are at high risk of developing this illness. Murali Doraiswamy, a leading clinical researcher in Alzheimer disease, and Lisa Gwyther, a founder of the Alzheimer Association, have co-authored this timely, state-of-the-art book directed at patients with Alzheimer disease, their informants, and their primary care physicians....I fully predict that this exceptionally well-written, reader-friendly book will become the standard resource for patients with Alzheimer disease and their loved ones. Its up-to-date information, patient-centered approach, and focus on prevention and treatment directed at patients with incipient Alzheimer disease distinguish it from The 36 Hour Day by Nancy Mace and Peter Rabins, which is directed at caregivers of patients with moderate to severe Alzheimer disease."
--JAMA (Journal of the American Medical Association)

Bob DeMarco is an Alzheimer's caregiver and editor of the Alzheimer's Reading Room. The Alzheimer's Reading Room is the number one website on the Internet for advice and insight into Alzheimer's disease. Bob taught at the University of Georgia, was an executive at Bear Stearns, the CEO of IP Group, and is a mentor. He has written more than 700 articles with more than 18,000 links on the Internet. Bob resides in Delray Beach, FL.

More from the Alzheimer's Reading Room

• Test Your Memory (TYM) for Alzheimer's or Dementia in Five Minutes
• The Thyroid and Alzheimer's
• Are Alzheimer's Caregivers the Forgotten?
• Flavanol-rich Cocoa Consumption Improves Blood Flow to the Brain
  
• A Simple Three Minute Test Can Detect the Earliest Stage of Alzheimer's Disease
• Eli Lilly Launches Two Late Stage Clinical Trials for Alzheimer's (LY2062430)
• Dimebon Clinical Trial?
• Wii a Useful Tool for Alzheimer's Caregivers
• Five Ways to Keep Alzheimer's Away
• 2009 Alzheimer's Disease Facts and Figures
• The Mini-Cog Test for Alzheimer's and Dementia
• What is Dementia?
• A Real Solution to the Health Care Crisis
• 80 Percent of Medical Bills Contain Errors -- Fighting Mistakes

The Alzheimer's Action Plan: The Experts' Guide to the Best Diagnosis and Treatment for Memory Problems

Original content the Alzheimer's Reading Room

Follow the Alzheimer's Reading Room on Twitter

Questions About Test Your Memory for Alzheimers and Dementia (TYM)

On Wednesday, I published an article about a new memory test for Alzheimer's that can be administered in five minutes. The links to the test and scoring sheet are contained in the original article -- Test Your Memory (TYM) for Alzheimer's or Dementia in Five Minutes.

I am receiving emails from readers and I thought I would address two questions.

One reader asked, "I am curious to hear their opinion, about the level of education for the test taker, and its effect on the validity of the test".

The authors did not specifically assess the effect of education during their testing. In the BMJ article they wrote,

This ceiling effect suggests that education and social class would have only mild effects on the TYM score, but we did not formally assess this. The reason for the low scoring controls was often apparent from the score sheet—lack of interest, reading problems, or a sense of humour.

I will try to talk to researchers and get a clearer answer to this question.

Several readers are asking about the scoring system for the test.

• The control group scored 47 out of 50 (ages 18-70).
• A score equal to, or less than, 42 detects Alzheimer's 93 percent of the time.
• Patients with Alzheimer's scored 33 out of 50.
• The range of scores for patients with Alzheimer's was 9-50.

The main finding of this research

The new "test your memory" (TYM) test is quick to use, examines 10 cognitive skills, and detects 93% of cases of Alzheimer’s disease.

If you would like to read the highly technical paper which was published in the BMJ follow this link -- Self administered cognitive screening test (TYM) for detection of Alzheimer’s disease: cross sectional study.

Have a question, put it in the comments box.

This is the first draft of this article and it will be updated.

For more Insight into Alzheimer's Disease
Subscribe to The Alzheimer's Reading Room

Bob DeMarco is an Alzheimer's caregiver and editor of the Alzheimer's Reading Room. TheAlzheimer's Reading Room is the number one website on the Internet for insight into Alzheimer's disease. Bob taught at the University of Georgia, was an executive at Bear Stearns, the CEO of IP Group, and is a mentor. He has written more than 600 articles with more than 11,000 links on the Internet. Bob resides in Delray Beach, FL.

More from the Alzheimer's Reading Room

• The Thyroid and Alzheimer's
• Flavanol-rich Cocoa Consumption Improves Blood Flow to the Brain
  
• A Simple Three Minute Test Can Detect the Earliest Stage of Alzheimer's Disease
• Eli Lilly Launches Two Late Stage Clinical Trials for Alzheimer's (LY2062430)
• Dimebon Clinical Trial?
• Are Alzheimer's Caregivers the Forgotten?
• Is it Really Alzheimer's or Something Else?
• Wii a Useful Tool for Alzheimer's Caregivers
• Five Ways to Keep Alzheimer's Away
• 2009 Alzheimer's Disease Facts and Figures
• The Mini-Cog Test for Alzheimer's and Dementia
• What is Dementia?
• 80 Percent of Medical Bills Contain Errors -- Fighting Mistakes

The 36-Hour Day: A Family Guide to Caring for People with Alzheimer Disease and Memory Loss in Later Life

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